Autoimmune Disease - Diagnosis Journey & RubyFEST
Hello friends and followers.
I feel that it is time to share on my public art platform about more details of my current life.
The first thing that I want to say is that, literally every moment of a day I am physically able to work on art, I am streaming it on my Twitch.tv for you to join in! So please follow me on twitch as MeheenRuby.
I’m actually typing this during a stream.
It’s a good way to boost my mood while “working” - I am on medical leave from all work at the moment and using art as a therapy tool to cope with my illness rather than a way to generate income since the first week of May.
In April I began to feel some serious health symptoms. The symptoms have progressed to the point where after early May I was physically unable to drive or complete my job tasks and many common household tasks.
As some of the physical symptoms have alleviated, specifically the pinched nerve injury, I still have serious symptoms from Thoracic Outlet Syndrome, Uterine fibroids and potential Endometriosis, and an Autoimmune myopathy, potentially myositis in some form.
Over the next several months I have many scheduled appointments including a consultation about proceeding with a diagnostic surgery.
I am optimistic and heartened by the love and support of my community.
Please clear your calendars for Friday, September 13th. I would like to share with you not just my work but the work of my support system of loving and talented artists, musicians, writers, scientists, and teachers.
I have received nothing but help from my community. Whatever ails me, I plan to adjust and heal as much as is reasonable. For now I have secure access to health care. However that may not always be the case if I am unable to do some serious fundraising. Shockingly my first needs fundraiser to cover housing costs and medical bill support became fully funded within 3 days and exceeded my expectations.
